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Virginia

Advocacy

  • The Alexander Graham Bell Association for the Deaf and Hard of Hearing 

    http://www.agbell.org
    An international membership organization on hearing loss and spoken language approaches and related issues.

  • Family Voices 
    http://www.familyvoices.org
    Family Voices is a national, grassroots clearinghouse for information and education on the health care of children with special health needs. It advocates for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children with special health care needs; promotes the inclusion of all families as decision makers; and supports essential partnerships between families and professionals. A contact person is listed for each state as well as available state resources.

  • Cochlear Implant Association
    http://www.cici.org/advocacy
    Provides information on being an effective advocate.

  • Families and Advocates Partnership for Education (FAPE)
    http://www.fape.org
    This project is a partnership that aims to improve the educational outcomes for children with disabilities. It links families, advocates, and self-advocates to information about the Individuals with Disabilities Education Act (IDEA).

  • Listen-Up
    http://www.listen-up.org
    Offers a variety of links on advocacy, including tips, self-advocacy, a self-help tutorial for parents, and more.

  • The Council of Parent Attorneys and Advocates
    http://www.copaa.net
    This independent, nonprofit, tax-exempt organization of attorneys, advocates and parents was established to improve the quality and quantity of legal assistance for parents of children with disabilities.

  • American Society for Deaf Children
    http://www.deafchildren.org/services/parentconnect 
    The Parents Connect Network provides e-mail communication that makes it possible to inform legislators of parents' perspectives rapidly and efficiently. When issues concerning deaf children are being decided, an email will be sent informing you about the issue and who needs to receive a letter from you. 

  • Hard of Hearing Advocates
    http://www.hohadvocates.org
    A non-profit foundation run by volunteers dedicated to helping the hard of hearing. The web site covers a variety of topics including information on assistive hearing devices, educational issues, digital hearing aids, legal issues, a message board and more. 

Organizations and Associations for the Deaf and Hard of Hearing

  • The Alexander Graham Bell Association for the Deaf and Hard of Hearing
    http://www.agbell.org
    An international membership organization on hearing loss and spoken language approaches and related issues.

  • Disabled Children's Relief Fund 
    http://dcrf.com                                                                                  
    DCRF focuses special attention on helping children throughout the U.S. that do not have adequate health insurance, especially the physically challenged, get the help they need, including hearing aids. Grant applications may be used for modest awards for assistive devices and rehabilitative services. Applications may be submitted by families (parent or guardian) for an individual child, or by a non-profit organization for a small group of children.

  • Association of Late-Deafened Adults
    http://
    www.alda.org
    Works collaboratively with other organizations around the world serving the needs of late-deafened people and extends a welcome to everyone, late deafened or not, who supports our goals.

  • Virginia Early Hearing, Detection and Intervention Program
    www.vahealth.org/hearing                   
    The goal of the Virginia Early Hearing Detection and Intervention program is to identify congenital hearing loss in children before three months of age and support intervention.

  • My Baby's Hearing
    http://
    www.babyhearing.org
    Website for parents regarding identification of hearing loss and what can be done to help their children.

  • The League for the Hard of Hearing
    http://
    www.lhh.org
    The League for the Hard of Hearing provides hearing rehabilitation and human services for people who are hard of hearing or deaf, andtheir families, regardless of age, ability to pay, or mode of communication, and by striving to empower consumers to achieve their potential.

  • The National Association of the Deaf
    http://
    www.nad.org
    NAD is the oldest and largest constituency organization safeguarding the accessibility and civil rights of 28 million deaf and hard of hearing Americans in education, employment, health care, and telecommunications.

  • The National Information Clearing house on Children who are Deaf and Blind
    http://
    www.tr.wou.edu/dblink
    DB-LINK is federally funded information and referral service that identifies, coordinates, and disseminates (at no cost) information related to children and youth who are deaf-blind (ages 0 to 21 years). Four organizations have pooled their expertise into a consortium-based clearinghouse.

  • Self Help for Hard of Hearing People
    www.shhh.org
    SHHH is a consumer, educational organization devoted to the welfare and interests of those who cannot hear well, their relatives, and friends. SHHH has 12,000 National members and 9,000 chapter members in all 50 states.

  • Council for Exceptional Children
    http://
    www.cec.sped.org
    The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

  • Exceptional Parent
    http://
    www.eparent.com
    EP's on-line resource, provides information, support, ideas, encouragement and outreach for parents, families, organizations, healthcare professionals and educators serving the special needs and disabilities community.

  • Federation for Children with Special Needs
    http://
    www.fcsn.org
    The Mission of the Federation for Children with Special Needs is to provide information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. We are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities.

  • National Information Center for Children and Youth with Disabilities
    http://
    www.nichcy.org  
    NICHCY's Web site provides information about specific disabilities, special education and related services for children in school, individualized education programs, parent materials, disability organizations, professional associations, education rights and what the law requires, early intervention services for infants and toddlers, and transition to adult life.

  • American Society of Deaf Children
    http://
    www.deafchildren.org 
    ASDC is a national, independent non-profit organization whose purpose is providing support, encouragement, and information to families raising children who are deaf or hard of hearing.

  • National Parent Information Network
    http://
    www.npin.org 
    The mission of NPIN is to provide access to research-based information about the process of parenting, and about family involvement in education. We believe that well-informed families are likely to make good decisions about raising and educating their children.

Modes of Communication and Education

  • Auditory - Verbal International (AVI)
    http://
    www.avli.org
    Auditory-Verbal International is a private non-profit international membership organization whose principal objective is to promote listening and speaking as a way of life for children who are deaf or hard of hearing.

  • The National Cued Speech Association
    http://
    www.cuedspeech.org
    An organization that promotes utilizing cued speech as a communication mode.

  • Oral Deaf Education
    http://www.oraldeafed.org
    Oral Deaf Education provides information and resources.

  • National Information Center on Deafness -- Clerc Center 
    http://clerccenter.gallaudet.org
    The Clerc Center has been mandated by congress to develop, evaluate, and disseminate innovative curricula, instructional techniques and strategies, and materials. The aim of the Clerc Center is to improve the quality of education for deaf and hard of hearing children and youth from birth through age 21.
     

  • Deaf Education: A Parent’s Guide
    http://home.inreach.com/torsi/frame.html   
    An online guide to educational placement, mainstreaming, Individual Education Programs (IEP’s), assessments, and more. 

  • Deafness: Choices of Communications
    http://www.answerpoint.org/columns2.asp?column_id=204&column_type=webliography
    resources on American Sign Language, Deaf Culture, Auditory Verbal Approach, Cued Speech, Signing Exact English, Total Communication and Assistive Devices 
    Produced by the Central Rappahannock Library, this document provides links to informative

  • Educating a Child who has a Cochlear Implant
    http://
    www.cici.org/educ.html  
    An informative fact sheet produced by the Cochlear Implant Association and funded, in part, by the American Speech-Language-Hearing Association, the Oberkotter Foundation, and The New York Community Trust. 

  • A Guide to the Individualized Education Program (IEP) http://www.ed.gov/parents/needs/speced/iepguide/index.html  
    A good overview of the process of implementing IEP for children with disabilities, including preschool children, from the U.S. Department of Education. 

  • Choosing an Educational Setting
    http://clerccenter2.gallaudet.edu/KidsWorldDeafNet/e-docs/CI/ModuleH.html
    An overview of placement options and issues involved in choosing an educational placement from the Laurent Clerc National Deaf Education Center, Gallaudet University. The Clerc Center has been mandated by Congress to develop, evaluate and distribute innovative curricula, instructional techniques and strategies, and materials in order to improve the quality of education for deaf and hard of hearing children and youth from birth through age 21. 

  • Mainstreaming the Student Who is Deaf or Hard of Hearing http://www.agbell.org/docs/mainstreamingDHH.pdf   
    Available on the Alexander Graham Bell Association for the Deaf and Hard of Hearing web site, this 69-page report provides a comprehensive background on the issues of educating those with hearing loss. 

  • 2004 Summer Camps for Children who are Deaf or Hard of Hearing http://clerccenter.gallaudet.edu/infotogo/142.html
    The Laurent Clerc National Deaf Education Center, Gallaudet University web site provides a list of camps, family learning vacations, and remedial clinics for deaf and hard of hearing children. Some programs are designed for the entire family.

Cochlear Implant Companies

Assistive Technology

 
  • Learning Independence Through Computers  
    http://www.linc.org
    Learning Independence Through Computers (LINC) is a non-profit computer resource center that provides opportunities for people with disabilities, their families, professionals, and members of the business community to explore adaptive technology, computer systems, software, and the Internet.
  • ABLEDATA
    http://www.abledata.org
    ABLEDATA is a federally funded project whose primary mission is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States

Professional Organizations

  • The American Academy of Audiology
    http://www.audiology.org
    The worlds largest professional organization of, for and by audiologists

  • American Speech Language and Hearing Association
    http://www.asha.org

    ASHAs mission is to ensure that all people with speech, language, and hearing disorders have access to quality services to help them communicate effectively. ASHA is the governing body for speech language pathologists and audiologists.

  • American Academy of Otolaryngology Head and Neck Surgery
    http://www.entnet.org
    The Academy represents more than 10,000 otolaryngologist--head and neck surgeons who diagnose and treat disorders of the ears, nose, throat, and related structures of the head and neck.

  • American Hearing Research Foundation
    http://www.American-hearing.org
    The American Hearing Research Foundation serves two vital roles: to fund significant research in hearing and balance disorders, and to help educate the public.

  • American Deafness and Rehabilitation Association
    http://www.adara.org
    ADARA strives to be the leader among professional organizations in transforming the paradigm of rehabilitation of Deaf people to enhancing the quality of life with people who are Deaf or Hard of Hearing

  • The Better Hearing Institute
    http://www.betterhearing.org
    The Better Hearing Institute was created to promote hearing healthcare across the United States. This organization empowers professionals to help individuals with hearing loss and be a source of knowledgeable information to the public about hearing loss.

  • International Hearing Society 
    http://www.ihsinfo.org
    The International Hearing Society (IHS) is the nonprofit, professional association that represents Hearing Instrument Specialists® in the United States, Canada, Japan and several other countries.

  • National Institute on Deafness and other Communication Disorders (NIDCD)
    http://www.nidcd.nih.gov
    NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language.